In celebration of World AIDS Day, we interviewed Section Editor Limin Mao, Associate Professor at the Centre for Social Research in Health…
We are delighted to announce our Collection on Health and Healthcare in Gender Diverse Communities, curated by our Guest Editors Dr. Asa Radix, Dr. Ayden Scheim, and Dr. Jae Sevelius. The collection includes a diverse group of articles investigating influences on mental and physical health, experiences accessing healthcare and engaging with the healthcare system, and the impacts of violence, discrimination, and stigma on health and wellbeing within gender diverse communities around the world. Additional articles will be added to the Collection as they become available, so be sure to keep checking back for the newest research.
Here, Drs. Sevelius and Scheim share their thoughts on this crucial area of research.
What recent developments or emerging trends in the field do you find most interesting or exciting?
JS: It is absolutely critical that we continue to advance the science around transgender children and youth. This science is imperative to inform advocacy for policies that support our young people and provide access to life-saving treatment, especially in this era of proposed treatment bans and myths around ‘desistance’. Further, learning more about how best to support trans people in their youth can help to prevent some of the persistent mental and physical health disparities we see among trans adults.
AS: I’m excited by the changing scientific and organizational leadership in the field, with trans health research increasingly led by trans people. This is not simply a matter of representation for its own sake — I think community knowledge and relationships can be leveraged to improve the rigour, relevance, and reach of our research. I also see growing topical and regional diversity in trans health research. Like cisgender people, trans people live everywhere in the world, grow older, and form families, and so improving the health of trans populations requires a holistic and global approach.
From your perspective, what are the biggest challenges faced by researchers working with and within gender diverse communities? Do you have any advice for effectively overcoming these challenges?
JS: As an intervention scientist working in close collaboration with trans communities, some of the biggest challenges are structural. The priorities of the funders drive the science, and the funding mechanisms and timelines often do not account for the incredible investment of time and funds required to get community-engaged science right. To be successful and relevant, our intervention research needs to be led by trans people themselves. Due to social marginalization, this work is the first formal job many of the trans people I work with have had, which means there is significant training and support required to ensure our teams are successful and thriving professionally.
AS: Although trans health research increasingly involves trans people in leadership roles, those trans people are too often those who (like me) benefit from structural racism and discrimination. It is vital that researchers attend to differences in power and life experience within trans and gender diverse communities. Ideally, they would use community-based participatory research approaches to forge research partnerships that build power and resources of trans individuals and organizations from marginalized backgrounds.
Why is open access publication important in this field?
JS: Among the many reasons open access is important, one tremendous benefit is ensuring that health care providers who are treating trans patients have access to the most current and relevant science, enabling them to make more informed treatment decisions. Further, because taxpayers fund the majority of our research, they should have free access to the results of our work.
AS: As anyone plugged into trans Twitter can tell you, trans advocates actively engage with research being published on trans health and use that research in their advocacy, from educating families to pursuing legal challenges. Among the many reasons for OA, making research findings accessible for community advocates is a key priority for me.
About the Guest Editors:
Asa Radix is the Senior Director of Research and Education at the Callen-Lorde Community Health Center and a Clinical Associate Professor and the NYU Grossman School of Medicine.
Ayden Scheim is an Assistant Professor of Epidemiology and Biostatistics at Drexel University.
Jae Sevelius is an Associate Professor of Medicine at the University of California, San Francisco, Co-Director of the Center for AIDS Prevention Studies (CAPS), Co-Director of the CAPS Developmental Core, and PI and co-founder of the Center of Excellence for Transgender Health.